Nearly half of all adverse events in industrialized hospital settings are attributable to surgical procedures, with surgical site infections (SSIs) occurring in 5% of patients undergoing surgical procedures. SSIs specifically account for nearly 15% of all nosocomial infections (World Alliance, 2008; Reichman, 2009). The cases of disability and death that are directly attributable to the 300,000 annual SSIs are entirely preventable through standardization and consistency of protocols that already exist in many hospitals. However, even in the most sophisticated settings, these protocols are fragmented and are not consistently followed (World Alliance, 2008).
Our APSS outline actionable steps healthcare organizations should take to successfully implement and sustain behavior change for high reliability, shared understanding, thorough communication, and meaningful person-centered care across the organization.
Actionable steps include:
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Learn MoreOn Sept 21, 2013 we and others were involved in a serious boating accident in which Jennifer sustained multiple internal life-threatening injuries, including several broken bones, head and neck trauma, and external lacerations. She was airlifted to a Level 1 Trauma Center and underwent multiple emergency surgeries.
She remained in a medically-induced coma and on life support systems for the next three weeks. In addition to her recovery from the injuries, Jennifer had to battle hospital-acquired conditions including VAP (Ventilator Associated Pneumonia), a UTI (Urinary Tract Infection), and BSI (Blood Stream Infection) before she regained consciousness and was able to breathe on her own through a trach airway.
After a total of four weeks stay in the Trauma Unit, she was discharged to an LTAC (Long Term Acute Care) facility. Soon thereafter, additional complications showed up including surgical site infection at the trach and a Peg Port infection in the abdomen. After three nights at the LTAC facility, Jennifer had to be admitted back into a Community Hospital for treatment of these newly acquired complications.
After two weeks at this hospital, her condition had significantly improved to where she had become mobile, was disconnected from most all tubes and lines, was able to go to the bathroom on her own, and was looking forward to eating soft foods again. At this time, she was breathing on her own, however, still with assistance through the trach port. Discharge planning had begun and we were told that by Wednesday morning she would be going home and would receive physical rehabilitation assistance. We really thought we had climbed a huge mountain and were now homeward bound.
A final requirement in support of the discharge and to starting on soft foods was that Jennifer needed to pass a barium swallow test.
Early Monday morning during this swallow test it was discovered that Jennifer had a TEF (tracheoesophageal fistula), which is a hole in the tissues between the trach and the esophagus. This a very serious complication and it requires a complex surgery to repair. This discovery triggered a series of intervening events, or at least we assumed so.
First and foremost, as a result of the barium migrating into her lungs, this brought about a high degree of respiratory distress. Over the next 36 hours, Jennifer was bounced and transferred back and forth between multiple units and caregivers. Her respiratory distress was also misdiagnosed as anxiety and thus multiple doses of Ativan were administered, further complicating the situation.
As the distress continued to progress, it ultimately landed Jennifer back in the ICU on Tuesday afternoon. There were no rooms available at this time, so they placed her in a recovery area, at which time the decision was also made to place her back on a ventilator.
Sadly, the caregivers at the time were unaware of the recently diagnosed TEF and they simply began ventilation through the existing trach. For the next 6 hours, they increased the cycle rate and O2 concentration levels until they were at 40 cycles per minute and 100% oxygen. No physical assessment was made, no blood gases were taken, and no ETCO2 monitoring occurred. All the while, the air being pumped into Jennifer was not going to her lungs, but instead escaping and collecting into her abdomen via the TEF.
At 12:04 AM, her body and organs had become completely oxygen deprived and Jennifer went into full cardiac arrest. A code blue was called and CPR was administered for 14 minutes, finally resulting in a restored heartbeat.
Needless to say, her brain had been so severely deprived of oxygen and glucose during this extended period of time that an unrecoverable amount of damage had occurred. The code blue team discovered Jennifer’s belly had been extended to 4X normal size, They did an emergency pressure relief through her abdomen and then re-intubated her, removing the trach and then using a longer ET tube where they isolated the TEF from the lungs.
For the next three weeks, Jennifer was kept alive on life support while remaining in a totally non-responsive state, during which time countless tests, scans, and neurological consults were conducted, all of which pointed to the same conclusion: massive and non-recoverable brain damage.
On November 19th, the decision was made to discontinue life support as there was no hope of reversing or recovering from the complexity and tragedy of these multiple medical communication hand-off errors and acquired complications. To this day, over two years later, not a single person at the hospital has ever said a word to me about the death of my beautiful wife.
Oddly, Blue Cross/Blue Shield (the member Health Plan) paid everyone involved in full, to the tune of $2.1M in submitted medical bills. BC/BS did not even know that Jennifer had passed away from these errors until I contacted them 1.5 years after the fact. And we all wonder why these types of patient safety tragedy stories continue to occur year, after year, after year. It’s really not hard to understand…to say that the system is broken is a gross understatement.
“For 36 hours we celebrated a homecoming…”
It was March 25, 2011, and the day had finally arrived. After years of dreaming about becoming a mother, Tara Hansen had spent the previous nine months preparing with her husband and high-school sweetheart, Ryan Hansen, for the arrival of their first child and the start of their new life together as a family.
No detail was missed in preparation. Nursery items were purchased and put away for safekeeping. Doctor’s visits were scheduled and plans were made for the delivery. And, as a lifelong athlete and model of good health, Tara was vigilant about maintaining her healthy lifestyle during pregnancy—eating well, staying fit, and fully committing herself to those regular, recommended prenatal appointments. She used to joke with her family that she was the first pregnant woman to crave spinach and mushrooms, not ice cream.
Hers was not a “high-risk” pregnancy, and there were no red flags of any potential problems before delivery.
Yet, just six days after giving birth to a healthy, 9 pound 4 ounce baby boy, Brandon Ryan, at a hospital close to the family’s home, Tara passed away as a result of complications due to childbirth.
“Between our two hospital stays, we spent 36 hours at home as Mom, Dad, and baby. Thirty-six hours looking for all the things we had ‘conveniently’ put away. Thirty-six hours to laugh with each other, and to love one another as a family. For 36 hours we celebrated a homecoming that was a lifetime in the making. That’s it,” Ryan recalled.
“Ultimately, Tara’s death was attributed to an infection from a third-degree tear that had gone unnoticed and uncontrolled, neither caught early enough nor treated aggressively enough to make a difference in saving Tara’s life,” he said.
The condition that cost Tara her life had not come entirely without warning. She began to feel unwell in the hospital after delivery, taking the time to speak to her health care providers about her concerns and suspicions that her body did not feel the way it was supposed to. But Tara was considered a healthy postpartum patient and therefore sent home.
“In my experience, the only person who knew something was wrong was Tara, and she was right. To me it appeared that her complaints just kept falling on deaf ears, with everyone assuming that the pain she was describing was to be ‘expected’ because she just had a baby,” Ryan said.
Following this experience, Ryan wanted to be a part of enhancing the way health care providers communicate with patients. Listening to patients’ concerns and not assuming they’re part of the norm may make a difference in helping to prevent maternal morbidity and mortality.
With a firm belief that sharing Tara’s story has the ability to possibly make things better for the next patient, wife, mother, or family member, Ryan launched The Tara Hansen Foundation in 2012 and now shares the message about the importance of maternal health and safety.
Ryan sees the foundation’s mission of education and raising awareness—the first steps toward real change—as a fitting memorial for the devoted elementary school special education teacher who, with her passing, left her husband with “her final lesson plan, her most important lecture.” It is one he fully intends to see passed on, to be a part of the educational initiatives that it is hoped will enhance a safer, more successful birth experience for all.
One of the educational initiatives the foundation hopes to support is the idea of Stop, Look, and Listen!—a reimagined safety campaign to focus on maternal health and safety. Ryan is pleased to be collaborating with the American Congress of Obstetricians and Gynecologists through their Safe Motherhood Initiative.
Diana Christine Brookins was born on a snowy February afternoon at Fitzsimmons Army Medical Center in 1979. She died on July 25, National Patient Safety Day, 2004. For 25 years, she was the life and light of her immediate and extended family and an entire community of people who watched her grow up onstage in critically acclaimed roles at her mother’s theatre company, HART (Hillsboro Artists Regional Theater Company), just outside Portland, Oregon.
When Diana was 25, she found out she was pregnant and made the decision to keep her pregnancy and her baby. She continued to live and work near her parents in Portland and participated in church and theatre activities. On Palm Sunday, 2004, as she stood in front of her pastor to receive an Easter blessing, Diana collapsed from the pain of a single gallstone.
She was rushed into surgery and a complication ensued immediately. The complication was not acknowledged despite frequent attempts to get attending physicians to believe her. Three weeks following Diana’s original gall bladder surgery, the surgeon did an exploratory operation and collapsed in the operating room upon realizing what permanent damage had been done to this young mother-to-be.
An eight-hour surgical repair followed. Diana lived in two hospitals in critical condition from the 14th until the 29th week of her pregnancy, when her baby daughter was delivered. Within 110 days of having a minimally invasive gall bladder operation, Diana had nine surgeries, nine PICC lines, and developed liver, kidney, and heart failure. MRSA-infected PICC lines had destroyed the tricuspid valve in her heart.
Diana died eight days following the birth of her only child, Julia Belle Brookins, who now resides with her maternal grandmother, Kim Sandstrom Hawskey. Kim is a member of Mothers Against Medical Error and speaks on behalf of patients everywhere. Kim also is the author of Damselfly: The Diana Brookins Story, which is the first full-length theatrical production dedicated to all who have been lost to medical negligence and error.
Alicia Cole had been a successful working actress whose only experience with healthcare was playing doctors on TV. All that changed, however, when she learned in 2006 that she needed a “routine” procedure to remove two small uterine fibroids. Originally, she was scheduled to be home in two days, but that never took place. She left the operating room with a fever, nausea, and pain, and her condition declined from there.
Five days later, during the evening dressing check, Alicia’s mother noticed a small black dot near the incision. In just over an hour, the dot morphed into a quarter-sized pustule. Right then and there, the doctor and Alicia’s mother performed a bedside surgical procedure, cutting open her abdomen and draining the toxic fluid. A terrified Alicia would eventually be diagnosed with multiple hospital-acquired infections including necrotizing fasciitis.
Alicia’s near-fatal case of flesh-eating disease turned her entire midsection into something out of a horror movie and her two-day hospital stay turned into: one month in ICU, two months in the hospital, six additional surgeries, near amputation of her leg, a year and two months of twice-a-day home health care for dressing changes, five months of daily hyperbaric oxygen chamber treatments and three years of treatment at a wound care center for an open, draining abdomen. Six years later, she is still in physical therapy and undergoing pelvic floor rehabilitation.
Alicia’s hospital was later cited for violation of five state laws and ten federal laws for patient safety, infection control, and unsanitary conditions in their operating rooms. An ICU nurse later shared that Alicia was his third patient with NF disease and the only one to survive.
With a talk-to-type program from her bed, Alicia began to share her experience via emails, blogs and social media to educate others. In 2008, she and her parents founded the Alliance for Safety Awareness for Patients (ASAP) as an education and awareness organization. Alicia became co-sponsor of California Senate Bill 158, a measure that helps ensure that hospitals maintain a sanitary environment and mandates public reporting of hospital-acquired infection rates, it also established training programs for hospital infection control professionals. The bill was signed into law in September 2008.
Alicia was also appointed to the state HAI Advisory Committee and has worked tirelessly on the Education and Public Reporting Subcommittee. This year, she also became a member of the State of Wyoming HAI Advisory Group and Chair of the Engagement Committee. She has worked with the Consumers Union Safe Patient Project, lobbied on Capitol Hill, presented at the CMS QualityNet Conference, and was among the inaugural class of patient advocates invited to contribute at the IHI National Quality Forum. All this between making her weekly doctor appointments and physical therapy!
Alicia is also currently a graduate certificate candidate in the Healthcare Management & Leadership Program at UCLA and consulted on the development of the school’s new Patient Advocate Program.
Our daughter Kate lost her life to an incurable cancer. Unfortunately, her journey was made even more challenging by life threatening hospital-acquired infection, misdiagnosis, and significant and permanent loss of lung function from septic shock.
We knew that we were facing a great battle with Kate’s malignancy but we never counted on the ravages of medical error, miscommunication, and medical care that was fragmented and chaotic. We promised Kate that we would finish the book we started together, so that others could learn from our experiences and hopefully avoid many of the adverse events we faced. The book took eight years to complete and it was the beginning of our patient safety efforts.